Data Confidentiality and Security

Cancer registration, confidentiality and consent

NB: Some of the information provided in this section on cancer registration, confidentiality and consent will apply only to England and Wales.

• Approved UKACR policies
• Legal background
• Communication with the Patient Information Advisory Group (PIAG)

Other useful documents

• Department of Health statement about Section 60 support for cancer registries (27 September 2002)
• Gillis Review of Cancer Registration in England (28 April 2000)- download below
• Release of cancer registry data: genetic counselling enquiries (21 November 1996) (Download PDF version (21KB))
• Cancer Registry Measures for the Manual for Cancer Services 2004 (October 2005)
• Academy of Medical Sciences report "Personal data for public good: using health information in medical research" (4MB, PDF) (January 2006)

Registry-specific request forms for patient-identifiable or potentially identifiable data

These forms can be completed electronically but should be returned either by post or fax. To download the files see below.